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Health-related quality of life in adults with classical infratentorial superficial siderosis

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posted on 2022-12-15, 10:12 authored by Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos PavlouMenelaos Pavlou, David WerringDavid Werring, Doris BamiouDoris Bamiou

Dataset underpinning the study on health-related quality of life in adults with classical infratentorial superficial siderosis. The data were collected between April 2020 and July 2021 as part of an online survey, and using the two common health-related self-reported outcome measures on  health-related quality of life: HUI3 and EQ5D. The study findings are reported in:  

Health-Related Quality of Life in Adults With Classical Infratentorial Superficial Siderosis
A Cross-sectional Study
Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos Pavlou, David J. Werring, Doris-Eva Bamiou
 Neurology Nov 2022, 99 (19) e2201-e2211; DOI: 10.1212/WNL.0000000000201115

Available from: https://n.neurology.org/content/99/19/e2201


To ensure the dataset is anonymised, in view of rarity of the disease, certain data were collapsed into categorical variables.
 

Funding

NIHR UCLH BRC Deafness and Hearing Problems Theme (BRC-1215-20016-546624)

Health Utilities Index Inc (licence fee waiver)

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