Health-related quality of life in adults with classical infratentorial superficial siderosis
Dataset underpinning the study on health-related quality of life in adults with classical infratentorial superficial siderosis. The data were collected between April 2020 and July 2021 as part of an online survey, and using the two common health-related self-reported outcome measures on health-related quality of life: HUI3 and EQ5D. The study findings are reported in:
Health-Related Quality of Life in Adults With Classical Infratentorial Superficial Siderosis
A Cross-sectional Study
Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos Pavlou, David J. Werring, Doris-Eva Bamiou
Neurology Nov 2022, 99 (19) e2201-e2211; DOI: 10.1212/WNL.0000000000201115
Available from: https://n.neurology.org/content/99/19/e2201
To ensure the dataset is anonymised, in view of rarity of the disease, certain data were collapsed into categorical variables.